Visiting Angels

Don't let the title scare you! We got a visit from Kade's teacher Mrs. Sturn. Kade was asleep for most of the time, however he did wake for a while and told her about plants vs zombies and asked her where the other kids were...it was kinda cute! We had a nice visit to say the least. She brought us some donations that everyone in the community had been raising, as well as some pop up books and some lunch and snacks (that were incredibly good by the way...and the tiny oranges were cute and tasty!) She also brought a giant card for kade that had been signed by everyone at Hillcrest Elementary that they had made themselves...it was pretty special. She also brought a Nintendo DSi that was a gift from everyone at Hillcrest. It was a christmas gift I believe, but I figured what the hell why wait let him enjoy it now and I wanted Mrs. Sturn to know how much he liked it. She also brought his school picture and it's so cute and warms my heart to see his healthy smiling face (when he had all his cute little teeth!)
I really want to say thank you to everyone at Hillcrest; the students and parents, Mr. Lewis, Mrs. Sturn, Kim Baker and the PAC...everyone! I also would like to thank everyone at Don Christian Elementary as well as Brookswood Secondary, and the other parents and kids that have opened their hearts to us and been so generous. I can't think of a way to express how grateful we truly are. You are all a god send to our family and we will forever be in your debt.

Our Swollen Hearts!

I sit in Canuck Place as I write this with mixed feelings. We are slowly and painfully realizing our time with our beautiful little boy is getting shorter. We found out today that we will probably spend the rest of Kades life here, which at this point could still be months (crossing my fingers and praying). He is on the symptom management program at this point, and they are trying to get his pain under control. They've been chasing his pain with different drugs and have come a long way, however they are not there yet. The original hope was that Kade would be able to wear a drug patch that would give him a slow dose over 48 hours and keep his pain under control. Unfortunately he has passed that point and he will have to receive IV pain meds with two separate pumps for the rest of his life. That means he will need to have a nurse at all times close to him. We may be able to get a pass for a couple of days if we get some training on the pumps, but it would mean setting up nursing care in our home for the 2 days that we would be there. The reality is that that will probably not be an option. We are discovering that his disease is very aggressive and I fear his time is short. With that horrible truth said we are in the very best place we can be. We will be spending christmas here as a family...which isn't so bad really. We will be spending christmas in a 16000 square foot mansion, that is totally set up for kids, being completely catered to, getting the best medical attention there is! did i mention the food is prepped by five star chefs...so yes we are eating. At this point it is just Elaine and I that are staying with kade, but Sebastian and Kieron will be staying here more later on! Kade is starting to feel a little better. He has started eating a little again, which is good because he has lost about 11 pounds. He was vommiting and had a bad bout of diarrhea that really dehydrated him, so we ended up in childrens hospital last friday over night. Saturday afternoon we were transfered here by ambulance. We've been here ever since!
One thing I really wanted to say is a huge thank you to all the increbly generous people that have been helping us! Every day we hear of more people that are fund raising and doing everything they can to help us. We have received money, food, gas cards and more. This has been an incredibly huge help as Elaine and I haven't been to work in just over a month! The community has been amazing. The PAC at Kades school, all the students and parents and teachers...everyone has been so generous. There are other schools in the area as well that are doing unbelievable things. I cannot express in words how thankful we are to all of you. The gift you are giving us is the ability to spend our babies last moments with him...for that we will forever be in your debt! Our love and thanks to all!

So This Is Hell.

It's with a broken heavy heart I write this. A couple of weeks ago we got the news we dreaded most. We were told that Kades cancer has returned and that it is uncurable. It has attacked his skeletal system this time and he has it on his spine, shoulders, ribs and pelvis. We were told that we have months with him at best. He is under going treatment for pain management only now, with hopes of fending off the disease to give us more time with our baby. He has gotten Radiation on his spine and he is getting chemotherapy again. He has been getting horrific pain in his legs caused by the tumor on his spine. This disease is rapid and unimaginably awful...god how i wish it was me and not him! All his little life I have been worried about him, and to see it coming true is killing me. No one should have to watch their children deteriorate like this. We are broken. This may be my last post as it is hard to think and feel, let alone write. Everyone is trying to help us, but nothing can make this go away. We love you all and we appreciate your support.