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Friday, January 28, 2011

Falling mighty!

Today is now Friday January 28. Kade has been in childrens hospital since last Sunday. The radiation and especially the chemo have been hard on our little hero. His blood counts dropped to the lowest point ever. In previous post I've said what his counts are supposed to be at, so forgive me for not repeating myself, and check them out if you like. This time Kade got a fever and we ended up here not because he had a cold or an infection, but because his counts were so low his little body was basically fighting itself. When cancer kids come in with a fever, they immediately do a blood culture that takes a couple of days to get results. Kades were all negative again...which is very good! When we came in his counts were: white blood cells 0.1, Neutriphils were 0, hemoglobin was 72, and his platelets 36! His counts were still on the way down too! The next day his hemoglobin dropped to 68, so he got a transfusion of red blood cells. Then his platelets dropped to 26... so he got a platelet transfusion. He has also been getting GCSF since his last chemo treatment (last Friday), and still his immune system basically disappeared. We've actually been very lucky he didn't pick up a bug... that might've killed him!
The biggest problem is that Kade became constipated. Due to the radiation his little bum is very raw and he has open sores. That makes going pooh very painful, so he holds it in...and got constipated. He was pumped full of antibiotics and laxitives. Finally his bowels let go... there was alot of screaming and at on point he broke down crying and told me he couldn't take it any more! Needless to say I almost lost it as well. It's quite hard to hear your 5 year old son who has a bad form of cancer (who's already been through hell) say he can't take it anymore!
Pain is stopping him from going #2... which at this point is stopping him from going home! His counts were alot better this morning, his wbc was 3.8, his neutiphils were 1.77, his hemoglobin was 98, and his platelets were 76!
This afternoon he was disconnected from his IV and thus taken off the antibiotics, now we are just trying to convince him to pinch a loaf...then we will be able to go home! They said if all goes well, we get to go home tomorrow!
We also got some of the results back from his re-evaluation scans. His kidneys and organs are functioning normally, but his bone scan shows no change. This doesn't surprise me however, considering that the treatment has been focused on the primary tumor. Also a bone scan isn't as revealing as a pet scan. The pet scan shows live active cancer, but the bone scan shows old dead cancer as well...even just scar tissue. We are waiting for his MRI on tuesday. That actually will show his primary tumor in images, so we will be able to see what the radiation has done! For now we wait and pray!