Christmas at home!

Well we lucked out and got to spend christmas at home! On christmas eve Kade started to get a little warm, and we atarted to think Santa was going to have to try to find him in the hospital. His temperature went back down though and we got through the evening dinner at Grandma and Grandpa's house fine!
Kade woke up extremely excited, like any 5 year old, on christmas day! He called to us to unhook him from his feed pump so he could go downstairs and see if Santa came. He literally squealed with joy when he saw what Santa had brought him. We opened our presents together, minus Sebastian and Kieron (they spent christmas at their moms house), we then had a lazy day and did nothing! No christmas dinner (we had left overs from grandmas), no company, no stress! We wanted to keep to ourselves to get some rest and to keep Kade away from crowds, the last thing he needs is to pick up a bug! Anyway our lazy christmas was awesome... very relaxing...finally we all got some sleep.
We got an early present last week, when Ayzac got to go home last friday! We all were happy, and very nervous. Poor Krystal has to give the little man a pharmacy of drugs daily and do all the things the doctors and nurses were doing by herself! If anyone can do it though it's Krystal...what an amazing woman... what an amazing mom! I was writing a post on this blog about it, and got about 500 words in when I hit a wrong button and deleted it all. I got so frustrated I didn't bother rewriting it! If any of you want to go to Ayzacs blog it's at angelsforayzac.blogspot.com! Krystal has done a great job with the blog...what an amazing story of courage, strength, pain, fear, and an unbelievable will to live! Please check it out!

Kade has now finished his radiation therapy and now we have to wait a month for his next evaluation to find out if it worked! In the meantime he is still getting chemo, and he is scheduled for another 6 day hospital stay on december 30th. Kade feels better now, it doesn't hurt quite as much when he goes pooh! His little bum is still red and sore. He now has a large radiation burn showing on his lower abdomen. The skin is swollen and red, and starting to blister. We have a prescription or two for the creams we are putting on the front and back of our little hero!
All in all, he is feeling much better and his spirits are high as usual. His appetite sucks right now and it's hard to get him to eat. He is getting bolus feeds during the day, and night feeds with his pump overnight. He eats occasionally here and there but nothing very substantial. He will have his NG tube in for the duration of treatment I'm affraid. He hasn't lost much weight though, not like the beginning! So we forge on in this battle, with hope in our hearts and determination. The cost is high, but we will beat this horrible disease...knock on wood!